HOPE

Hope: n. A feeling of expectation and desire for a certain thing to happen
v. Want something to happen or be the case

Hope is a very pregnant word. Pregnant with promise, with desire, with expectation. A feeling of better things to come. A small word with big meaning. When things are black and stormy in my life, I hope they get better. Sometimes I feel this hope is misplaced, especially when I’m deep in the pit; when it’s hard to reach out a hand and ask for help. It’s getting easier these days. When my therapist says to hang on, the depth of these feelings in transient, I have faith in her word, and trust and hope she’s right. And she always is. I always come through. And lately I can say I come through unscathed. Weary, oh gods, am I weary. But it’s been months now since I’ve self harmed. Even the most recent scars have faded to pale lines, no darker than the rest of them. She tells me that self injury had a place in my toolbox of survival long ago, BUT THINGS ARE DIFFERENT NOW. And she is correct in that. I’m different in my body and being. I see the urges for what they are: lying monsters.

The monsters wail
Begging to be fed
Promising light after the blood
To slumber in the post pain haze

I know the truth
Of their existence
Never sated, always begging for more
The cravings deep

Alone in the night
With the monsters in my head
In my heart
In my soul
Filling the cracks with blood
In the place of tears

SAFETY CONTRACTS AND SELF HARM

I’ve been with my therapist for about three years now. One of the first things she did was put me on saftey contract. I am proud to say, in that three years, I have only intentionally violated it once. I say intentionally, because the things she considers to be self harming behaviour are myriad. Not using my seatbelt in the car, driving too fast on the highway, not eating right, even not maintaining good sleep hygiene. All of which I’m guilty of at some point. I’m finally at a point where my med compliance is no longer an issue, just a struggle. When I’m feeling good, I don’t think I need them. When I’m not feeling good, I feel what’s the point. So it’s a constant struggle. But the main focus of my contract is the obvious, direct ways I harm myself: drinking and cutting. And after yesterdays session, the struggle is real. I even reached out to her about it last night. She didn’t respond, but as I was in no real danger, I wasn’t really expecting her to.

Self harm. Two little words. The act of hurting oneself. Doesn’t really sound too bad, does it? I even managed to inflict a bit on myself while in her office yesterday, squeezing my hand too hard and leaving deep imprints of my fingernails, took a bit of skin off. She commented on how easy it is to fall back into old ways of coping. It left marks which still are there, though faint, today. It’s so deeply imbedded in my pysche as the only way out of emotional distress, be it feeling too much or too little. And right now I’m feeling too much. Way too much. I can’t even define all that I’m feeling. I tried to in her office yesterday, and last night when I was dying for a sharp to drag across my skin. Lost. Alone. Sad. Melancholic. Overwhelmed. Not present. Broken. Hurt. And a multitude more floating through my brain and body. And that’s what’s so damn hard about this. The feelings are so strong, they’re painful. My body hurts from carrying them. The release of a little blood seems a fair price to pay for the relief. But one of the last things she said to me yesterday was, “Remember your contract. A promise.” A promise to her as well as myself to stay safe. And there are days I curse that contract. That promise. If it was only with myself, it wouldn’t be so bad. I could live with that. But the shame I would feel going into her office next week, and having to say, “I fucked up,” keeps me strong. That and the fact that there are no readily available sharps that I can access. I have a disposable razor in the bathroom, one I keep for emergencies like this. However, the fact of the matter is, I would have to dig it out, dismantle it, and then carry through with the very act I have sworn not to. Many opportunities to pause and think things through. Which she would not hesitate to point out. Something I really value in her is her refusal to accept bullshit answers and provide clarity when things are muddy to me. So rather than face that, I stayed in bed, my safe zone. Except when it isn’t. I try hard to keep my bed a safe place. Injuring myself in the bath, where it’s easy to clean up, or on the floor of my bedroom. My bed is sancrosanct. Not to say I haven’t used an x-acto knife that I forgot to put away while sitting there, focusing only on the imminent relief. That pressure valve which causes immediate and tactile release. But word is my bond. So I suffer. Like Tennyson wrote in Ulysses, “All times I have… suffer’d greatly, both with those/That loved me, and alone… One equal temper of heroic hearts,/Made weak by time and fate, but strong in will/To strive, to seek, to find, and not to yield.”

WHAT DOES IT MEAN TO BE BORDERLINE?

I’ve been thinking about diagnoses and what they mean to the one receiving them. Usually they come with a sense of relief: I’m not crazy. These symptoms do mean something. But what happens when the diagnosis means you are crazy? What does that mean? I’ve been fighting the BPD diagnosis for years. Never had a therapist agree with it, though I’ve received the diagnosis from more than one psychiatrist. Recently there has been a movement in the trauma treatment community to change it to Complex Post Traumatic Stress Disorder. My current therapist, who is a gift sent from wherever such things come from, explained it to me in a way that made me feel a lot better. It’s not that I’m not fixable, which is the prevailing feeling among most old school practitioners; it’s just that my brain needs a different way of fixing it. I’ll never be neuro-typical. But I can learn to adapt and rearrange the way I process information.

Complex post-traumatic stress disorder (C-PTSD; also known as complex trauma disorder) is a psychological disorder that can develop in response to prolonged, repeated experience of interpersonal trauma in a context in which the individual has little or no chance of escape. (wikipedia) The resulting symptoms closely mirror that of BPD. The key difference between BPD and C-PTSD is that symptoms of BPD stem from an inconsistent self-concept and C-PTSD symptoms are provoked by external triggers. The inconsistent self-concept happens as a direct result of the early childhood trauma or ongoing trauma with no escape. Combine the two, you end up with a very fractured sense of self. Typical therapies for BPD used are DBT (Dialectic Behaviour Therapy) and CBT (Cognitive Behavioural Therapy), neither of which address the underlying trauma.

I grew up always afraid of my father. I don’t remember a time when I wasn’t. That’s how early the abuse started. He was never physically violent to my mother, but he was very much emotionally and verbally abusive. In typical abuser fashion, he never started until after they were married and she was “trapped” with a baby. My therapist explained to me that babies can pick up what’s going on around them, so if my mother was anxious, sad, or afraid, I would’ve understood something was wrong. When asked why she stayed, she recently told me she couldn’t admit to her mother that her mother was right. So her pride ruined my life. Well, my life up to this point. I’m taking charge of it now, and learning to say no to the shit I don’t have to put up with.

Add to the mix a cousin who taught me things no six year old should ever be aware of, a very abusive relationship at a young age with a much older man, and a more recent sexual assault, is it any wonder that my sense of self is fractured? I’m now learning that I matter, that what I want and feel are valid. Novel concepts to be learning at 45. I wish I had the confidence of my young sons. They know they’re important, they understand body autonomy, and while they may not yet know what it is, they live their lives with a purpose.

I long for the day when I can live beyond the day to day, minute to minute, second to second it takes to survive sometimes. But everyday I’m getting stronger. A solid therapist with strong boundaries is key. I’m very fortunate to have found one. She holds the space while I try to feel whatever emotions are coming up. She holds it without judgement and without forcing it. Which is what someone who has suffered much trauma needs. I am doing EMDR, (Eye Movement Desensitization and Reprocessing) along with a combination of other modalities. I take a mood stabilizer to boost the effect of my anti-depressant, and I take an alpha blocker, which helps prevent the nightmares. Being taught coping mechanisms (Babette Rothschilde is an amazing source for this), I can even manage my panic attacks and flashbacks. I’m in a stable relationship, I’m a pretty decent parent, and a damn good friend. None of which should be possible if I was truly only suffering from BPD.

So what does the diagnosis mean to the one receiving it? In my case, nothing at all. It bothered me at first, and if I had received it years ago, before I started working with my current therapist, it might have destroyed me; taking away any hope of ever getting better. Now, it’s a label that might help my disability claim, but that’s all it is. It doesn’t define who I am as a person. It changes nothing. My trauma work is the most important thing I can do for myself, and in doing it, I will free myself from the bindings of a difficult diagnosis with a less than helpful prognosis.

HOLDING MY OWN

How good it feels to be away from the edge of The Pit. Despite being mostly housebound due to inclement weather, I have been feeling pretty good. Maybe because I haven’t had to be social. Who knows. I’m enjoying it while it lasts. Can’t help but wonder, though, if this is a shift toward hypomania. the pdoc I saw didn’t see a bipolar diagnosis. Borderline Personality Disorder, Complex PTSD, Generalized Anxiety Disorder, and, finally, Persistent Depressive Disorder. She said there is a lot of overlap with BP and BPD, so sometimes it’s hard to get a clear diagnosis.

A new year always brings with it some reflection. I’m not the type to make new years resolutions,; my goals change as I grow and change. And I wanted to take the time to give thanks to the woman who led me through the darkness to the light. I wrote a poem for her, and gave it to her just before we broke for the holidays. She never said anything about it, so I should probably not be embarrassed by it. I thought I’d share it with you.

A ship with a broken compass

Tossed on the waves

Hither and yon

Sinking slowly

Trying to find my way

By a North Star

Lost in a sky

Of darkness and despair

The clouds thick

Ever present

Blotting out the light

Along came a guide

Showed me how to mend

That broken compass

To fight my way

Back to the light

Behind the clouds

The siren song

Is still loud at times

But I have a gift

A toolkit

Cobbled together

Patiently guided

With grace and skill

To heal the wounded

Children within

HYPOMANIA!!!!!!!! 

As many of us bipolar bears, I have been on a cocktail of numerous psychotropic drugs.  While keeping me from being actively suicidal, they have definitely left me feeling numb.  No severe lows, but no highs either. This feeling flat has robbed much enjoyment out of my day to day existence.  So after being on it for two years, and my blood levels getting lower and lower with the same fairly high dose, we started titrating it. Once down to 600 mgs spread out over two doses, my doctor let me quit it completely. And within days my mood skyrocketed. Hypomania for the win.  After being disinterested in everything for so long this has been a welcome change. 

Of course, there’s always a downside, isn’t there.  Impulsive behavior. Reckless reckless thoughts.  Knowing the outcome is always the same doesn’t make not giving into them any easier. Thankful for a solid support network and an understanding, yet firm, therapist. Who is letting me email her through the holidays if necessary, as I’m in a “vulnerable place” right now. 

So happy holidays to all and may you stay safe. 

Squirrel

ANYTHING 

Long days
Longer nights
The scars on my soul
Aching

Aching for the
Unknowable
Unattainable
Dead eyes in the mirror
Staring back

Belie the turmoil
Just under the skin
Marked in the desire
To feel something

Anything