MED COMPLIANCE

At night, the monsters come out. Since my dentist appointment last week, I’ve been having dreams of disembodied hands. Creepy and unsettling. I wake up in a cold sweat, and don’t want to go back to sleep. So I stay up and read. Or listen to books on Audible. I’m acquiring a collection of un-listened to books that will rival my to be read stack of paper books. But that’s ok. Somethings to look forward to.

Am struggling with med compliance again. I’m tired of feeling flat and numb, and blame it on the Abilify. I’ve been reading up on it, and apparently it’s a common side effect. Right away she was concerned that I was still taking them. She was genuinely concerned that I would quit it cold turkey. Given my history, I would have to say that her questioning me is warranted. I started at 2mg, and now I’m up to 20. That’s a big dose. Especially since the last p-doc I saw stated that I don’t even have bi-polar. I understand that I might need a mood stabilizer, as anti-depressants alone never work properly. I do question, however, the need for an atypical anti-psychotic. At such a high dose. The last p-doc I saw was just a consult, but she said I could see her in a year if I wanted to discuss a med change. So I need to call the hospital and find out if I can make an appointment through them, or if I need to go through my doctor. My therapist is all about getting it done. I hem and hawed and will be doing it in the new year. I may bite the bullet and call this week, so it’s not hanging over my head. But I hate talking on the phone. I have real anxiety about it. So much so that even my therapist only contacts me via email. Even if it’s the day of an appointment, she knows I’m on my email, but if I don’t recognize the number, I won’t answer the phone. I’m so glad she’s willing to work with my limitations and foibles, without making them a focus or a big deal.

I have a feeling, since last week we didn’t really touch on anything big, as I’ve been pretty stable, we’re going to do some EMDR on Thursday. Just in time to do three weeks before she takes her two weeks off over Christmas. She is also planning on taking a week off in the middle of January. I’m just glad she’s not taking all three weeks off at the same time. Three weeks is a long time when you’re used to weekly sessions. She asked me how I’m feeling about the two weeks off. I replied, “Besides feeling abandoned?” Then I laughed and told her I was joking. “You’ll be holding seminars on how to yank your therapists chain.” I have mixed feelings about starting EMDR again. I’m scared of how it’s going to go now that I’m having visual flashbacks. My flashbacks have always been somatic, meaning feelings only. Recently, I’ve been having some pretty severe visuals. Not just feeling his hands around my neck, but seeing them. His cold, cold eyes. The collapse when I tried to stand up and he grabbed me by the neck and threw me back on the bed. Instead of just feelings of dread and sensations, I’m full on remembering. Which sucks.

I have my protocols. Babette Rothschild has saved my sleep. Her “8 Keys To Safe Trauma Recovery” has provided some very solid protocols on dealing with flashbacks and nightmares. So much so that I wrote them down for easy access at night. And I’ve passed them onto friends. They’ve been so helpful. I recommend that book to everyone I know with a trauma history that impacts their daily lives. Even if only sometimes.

Alone in the Dark

Fortunately, most nights the prazosin does its job and my nights are nightmare free. Which is a relief after years of constant bad dreams and terrors. Unfortunately, it can’t stop the terrors. Or the somatic memories. Which are coming in full force. I always forget the body keeps track of the changing seasons, and the associated traumas that come with them. I ignore the tightness of the chest, the trouble breathing. The tightening of the body that indicates a collapse response. But to what? There is no reason for this sudden onset of dark memory. Until I look at the calendar, and realize this is the time of the great uncollaring. Two years a sex slave. There is no way to soften those words. The acceptance of the reality of the years I spent from 15 to 17 has been hard to swallow. The depravity, the cruelty, the bones of affection that kept me coming back. The collar that was supposed to indicate a commitment from him to me, me to him. In some ways, that collar was more symbolic than a wedding band. It meant my total submission to him. My mind, my heart, my soul, my body. And a promise to take care of all of me. To cherish that submission. Instead, I was trafficked, used, abused, and, jsut shy of my eighteenth birthday, he took the collar off. “You’re too old. There’s nothing left to teach you,” summarily dismissed. No contact ever again. Thirty years later, I’m still dealing with the aftermath of that cold abandonment. So much of how I see myself shaped by those cold, calculating hands.

And I lie awake at night, woken up by the spectre of his presence. Even now, there are times the agony of the missing collar hurts worse than the missing wedding band of a failed marriage. I swallow hard, expecting to feel the hard leather around my neck. It’s absence a hard thrust into reality. A reality where I feel my failure keenly. Even though, really, I didn’t fail. I was trapped. And even though the method of my escape was brutal and cold, I did. Not unscathed. Not whole. But free.

And yet I wake at night. Cold sweats. Rapid, shallow breathing. I feel his breath on the nape of my neck. The touch of the lash. The cuffs. As I type this, I need to practice my grounding techniques. The touch of the floor on my feet. I’m safe. I’m where I chose to be. I can leave. I’m alone. That’s the big one. I’m alone. I’m all alone. By choice. No one around to hurt me. No one to pin me down. I’m free to be the best self I can be.

WHAT DOES IT MEAN TO BE BORDERLINE?

I’ve been thinking about diagnoses and what they mean to the one receiving them. Usually they come with a sense of relief: I’m not crazy. These symptoms do mean something. But what happens when the diagnosis means you are crazy? What does that mean? I’ve been fighting the BPD diagnosis for years. Never had a therapist agree with it, though I’ve received the diagnosis from more than one psychiatrist. Recently there has been a movement in the trauma treatment community to change it to Complex Post Traumatic Stress Disorder. My current therapist, who is a gift sent from wherever such things come from, explained it to me in a way that made me feel a lot better. It’s not that I’m not fixable, which is the prevailing feeling among most old school practitioners; it’s just that my brain needs a different way of fixing it. I’ll never be neuro-typical. But I can learn to adapt and rearrange the way I process information.

Complex post-traumatic stress disorder (C-PTSD; also known as complex trauma disorder) is a psychological disorder that can develop in response to prolonged, repeated experience of interpersonal trauma in a context in which the individual has little or no chance of escape. (wikipedia) The resulting symptoms closely mirror that of BPD. The key difference between BPD and C-PTSD is that symptoms of BPD stem from an inconsistent self-concept and C-PTSD symptoms are provoked by external triggers. The inconsistent self-concept happens as a direct result of the early childhood trauma or ongoing trauma with no escape. Combine the two, you end up with a very fractured sense of self. Typical therapies for BPD used are DBT (Dialectic Behaviour Therapy) and CBT (Cognitive Behavioural Therapy), neither of which address the underlying trauma.

I grew up always afraid of my father. I don’t remember a time when I wasn’t. That’s how early the abuse started. He was never physically violent to my mother, but he was very much emotionally and verbally abusive. In typical abuser fashion, he never started until after they were married and she was “trapped” with a baby. My therapist explained to me that babies can pick up what’s going on around them, so if my mother was anxious, sad, or afraid, I would’ve understood something was wrong. When asked why she stayed, she recently told me she couldn’t admit to her mother that her mother was right. So her pride ruined my life. Well, my life up to this point. I’m taking charge of it now, and learning to say no to the shit I don’t have to put up with.

Add to the mix a cousin who taught me things no six year old should ever be aware of, a very abusive relationship at a young age with a much older man, and a more recent sexual assault, is it any wonder that my sense of self is fractured? I’m now learning that I matter, that what I want and feel are valid. Novel concepts to be learning at 45. I wish I had the confidence of my young sons. They know they’re important, they understand body autonomy, and while they may not yet know what it is, they live their lives with a purpose.

I long for the day when I can live beyond the day to day, minute to minute, second to second it takes to survive sometimes. But everyday I’m getting stronger. A solid therapist with strong boundaries is key. I’m very fortunate to have found one. She holds the space while I try to feel whatever emotions are coming up. She holds it without judgement and without forcing it. Which is what someone who has suffered much trauma needs. I am doing EMDR, (Eye Movement Desensitization and Reprocessing) along with a combination of other modalities. I take a mood stabilizer to boost the effect of my anti-depressant, and I take an alpha blocker, which helps prevent the nightmares. Being taught coping mechanisms (Babette Rothschilde is an amazing source for this), I can even manage my panic attacks and flashbacks. I’m in a stable relationship, I’m a pretty decent parent, and a damn good friend. None of which should be possible if I was truly only suffering from BPD.

So what does the diagnosis mean to the one receiving it? In my case, nothing at all. It bothered me at first, and if I had received it years ago, before I started working with my current therapist, it might have destroyed me; taking away any hope of ever getting better. Now, it’s a label that might help my disability claim, but that’s all it is. It doesn’t define who I am as a person. It changes nothing. My trauma work is the most important thing I can do for myself, and in doing it, I will free myself from the bindings of a difficult diagnosis with a less than helpful prognosis.

DAYTIME FEARS NIGHTIME TERRORS

Daytimes fears
Become nightimes terrors
Monsters hiding in the dark
In our minds
Playing tricks with time

Though it happened years ago
It still feels like today
Your breath on the back of my neck
Your hands holding me down
The weight of your body
On mine

I wake in the dark stillness
The only sound
My rapid breathing
Yet I hear your voice
Crooning those sweet words
That I know now
Are empty lies
Abusive
Full of pain

A gift that keeps giving
Over and over
Neverending
Days of fear
Nights of terror

MONSTERS IN MY MIND

Another sleepless night
Afraid to close my eyes
The monsters in my mind
Come out and play

Years go by
The memories have yet to fade
Still sullied by your
Unwelcome presence

I wake in terror
Feeling you
Smelling you
Hearing yiir voice

And again
And again
I want to die

RELEASE ME

Release me from the torment
Your mem’ry brings
Release me from the torment
Night time brings

I remember your touch
Your smell
Your eyes

Release me from the torment
Your mem’ry brings
Release me from the torment
Night time brings

I still feel your touch
Your breath
Hot on my skin

Release me from the torment
Your mem’ry brings
Release me from the torment
Night time brings

I cower in my bed
Watch the numbers on the clock
Waiting for the sun to rise

Release me from the torment
Your mem’ry brings
Release me from the torment
Night time brings

Are They Real

Another night of flashback hell.  I hate this.  Sometimes the tools in your toolbox just aren’t enough and all you can do is wait for the sun to rise. 

Lenti Lenti Currite Noctis Equi–Faust 

Oh slowly run
The horses of mine heart
Keep calm and cool
An even gait
Immune to the forces
Of our o’er active mind

Let neither evil thought
Nor frightful fragment of mem’ry
Cause thy pattern
To beat out a-pace

The fever’d imaginings
Of a diseased
And fractured brain
Can do you no harm